The MS Gym Podcast

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May 12, 2022  

Celebrating in Sacred Spaces

Today, we chat with Susan and learn about her two-decade journey with MS. Join us as she talks about her:

  • First symptoms
  • Diagnosis
  • Familial connection with MS
  • Challenges with employement
  • Lifestyle and medical choices
  • Dedication to exercise and The MS Gym
  • Her upcoming "why"
  • Meaningful walking victories and community support
  • Freedom and joy in doing everyday chores
  • Advice for new MS Gym members
  • Buddy Group

The MS Gym Links

The MS Gym

March 23, 2022  

Build Your Mindset Muscle

Feel refreshed today as we chat with MS Gymmer Jennifer Laymon and hear about her:

  • Houdini symptoms
  • Treatment choices
  • Belief in The MS Gym
  • Negative self-talk
  • Dedication to growth
  • Many physical and mental victories
  • Winner mindset about exercise and effort
  • Goals and dreams for the future

MS Gym Links

Motivation Monday: How To Live a Life By DESIGN..NOT by Diagnosis

Motivation Monday: You are NOT Alone Anymore

Mindset Minute: Feed Your Mind Well

THE MS GYM

 

March 7, 2022  

Embracing our Inabilities

Are you fighting for control?

It can be so tiring to make the "right" choices. So exhausting to do everything perfectly. What happens when we think we're on the right path but it doesn't lead to the destination we were hoping for? What then?

What would it look like for you to embrace your inability to control everything?

February 9, 2022  

Walking Wonderlands

Today, we venture overseas to chat with Susannah to learn more about her:

  • Multifaceted diagnosis
  • Support system
  • Teaching career
  • Love of travel
  • Walking adaption with trekking poles
  • Increased Confidence
  • Improvements, mentally and physically
  • Deep desire to connect with friends and family
  • Her goals and plans for the future

MS GYM LINKS

The MS Gym

January 25, 2022  

CANES VS. TREKKING POLES: What’s Right for You and When with Trevor Wicken

Welcome to the episode I've been dying to bring to you! It's all about the use of canes and trekking poles, and, most importantly, the advantages or disadvantages of using one or the other; and, yes, believe it or not, there are HUGE differences in these two modes of assistance.

Luckily for us, today we have access to wisdom and professional insight of Trevor Wicken, founder of the MS Gym, to break it all down for us.

I think it's important to point out that though many of you may know him as Coach Trevor, I'd be remiss if I didn't mention that Trevor holds a Bachelor’s Degree in Sports Medicine and Master’s Degree in Exercise Physiology & Biomechanics. His education AND his 21+ years of professional experience are steeped in biomechanical analysis, neurologic strength training and neuroplasticity in addition to his other specialties. I can think of no better resource to give us advice on how, when, and which assistive device we should be using.

EPISODE NOTES:

  • At what point in your mobility journey should you be considering a assistive device?
  • The stigma that accompanies assistive device use
  • Paying attention to your patterns of mobility difficulty
  • Giving yourself permission to allow yourself to feel safe
  • Why Trevor loves trekking poles
  • Our bodies are wired for symmetry
  • Assistive devices give your brain the opportunity to chill and concentrate on walking
  • What's missing in your walking chain when you use a cane?
  • The danger of asymmetry
  • Restoring gait patterns with trekking poles
  • Who wouldn't you recommend a cane or trekking poles for?
  • When one trekking pole or cane should be used
  • You've got to check your ego!
  • What comes first, a rollator or a cane/trekking pole?
  • When you're not ready for trekking poles
  • In which hand should you be holding your cane trekking pole
  • How reaching for things throws you off balance
  • Are there programs within the MS Gym (membership or free) that specifically address cane and trekking pole use?
  • The final word on which device Trevor favors...canes or trekking poles?
  • The ongoing conversation we have with ourselves regarding the stigma of mobility device use
  • Learning not to be ego driven
  • You can't control what people think
  • What's good for you is good for your social circle
  • The gift of the disease

LINKS:

The MS Gym

Instagram - @themsgym

Website - www.themsgym.com

Facebook - https://www.facebook.com/groups/TheMSGym/?ref=share

Brooke Slick

Instagram - @brooke.slick

Website - www.brookeslick.com

January 12, 2022  

Shifting from Sadness to Smiles

Today's journey takes us to Quebec, Ontario to chat with one of our members, Mae. Join us as we learn more about her:

  • Initial symptoms
  • Diagnosis at a young age
  • Decision to pursue a career in the medical field
  • "Forced" retirement
  • Daily exercise routine
  • Positive Mindset
  • Ability to celebrate victories big and small
  • Contagious smile

The MS Gym Links

The MS Gym

Motivation Monday: If you can walk 3 steps, you can walk 30

December 22, 2021  

Dancing to a NEW Rhythm

Be encouraged and entertained as we chat with Charla about her:

  • Symptoms and diagnosis
  • Career adaptations as a dancer and coach
  • Severe dietary reactions
  • Ability to become a detective of her MS symptoms
  • Finding The MS Gym
  • Improvements that came from neurologically-based exercise vs. traditional weight lifting
  • Motto of "I'll improve you wrong"
  • Gratitude in finding victory in all things
  • Never giving up spirit

The MS Gym Links

The MS Gym

 

December 8, 2021  

RAISING YOUNG CHILDREN WHEN YOU HAVE MS: with Julie Stamm, Author, MS Advocate, Mother

This episode welcomes Julie Stamm, author, MS advocate, and proud mom of Jack to the podcast.

Julie, who wrote the recently-released book, Some Days, A Tale of Love, Ice Cream and My Mom's Chronic Illness, shares with us her insight on raising a young child while having MS.

Her thought-provoking book, written from a child's perspective, proves that through a child's eyes, things may not be exactly as they seem, and the pressure you may be putting on yourself to perform for your child is likely an unrealistic, self-imposed expectation.

We hope you walk away from this episode with an enlightened feeling of relief, knowing that in the end, all your child needs is your time and your love.

EPISODE NOTES

- About Julie's book, Some Days

- The fears that come with pregnancy when you have MS

- How she and her son view "bad days" differently

- Turning obstacles into games

- Teaching your child resilience

- How the book is uniquely from a child's perspective

- Teaching your child that "everyone has something"

- Explaining MS to your child

- Incorporating your disability into fun

- Adapting how you play with your child based on your current symptoms

- The importance of talking to your child

- The things your child will and won't remember

- Whether to disclose your disease from your child or not

- Teaching about disability/chronic illness and empathy in the classroom

- Customizing the cover of her book

- Book #2 coming out next Fall...Book #3 the following Fall.

- Julie's advice to pregnant moms and women considering having children

LINKS:

Some Days, A Tale of Love, Ice Cream and My Mom's Chronic Illness

Motion Censor Night Light

The MS Gym

Instagram - @themsgym

Website - www.themsgym.com

Facebook - https://www.facebook.com/groups/TheMSGym/?ref=share

Brooke Slick

Instagram - @brooke.slick

Website - www.brookeslick.com

November 17, 2021  

Finding Victory in Vulnerability

In today’s episode, we journey to England to chat with Ann about her:

  • First symptoms and diagnosis
  • Sudden disruption of career opportunities
  • Ability to adapt to changing circumstances
  • Threat bucket
  • Willingness to be vulnerable
  • Passion for writing and poetry
  • Love letter to The MS Gym (see below)

Acrostic poem to Trevor Wicken and The MS Gym

Thousands of strangers are connected by hope.

Redefining their abilities and expectations.

Evolving in their bodies and minds.

Virtually family.

Ordinary people experiencing extraordinary miracles.

Results speak for themselves.

 

Wisdom and passion fuel our journeys.

Individuals feel valued.

Compassion is contagious.

Kisses and hearts festoon the house you created.

Endurance is easy.

Now that you have brought us together.

 

The MS Gym Links

The MS Gym

Motivation Monday: Threat bucket

 

October 27, 2021  

COVID 19 & MS - The Latest Guidance on the Vaccine, the Booster and What to Expect with Dr. Marwa Kaisey

SUMMARY:

In this episode, I welcome board certified neurologist, Dr. Marwa Kaisey, to the podcast where we discuss the most up-to-date information on COVID vaccines and COVID boosters. In particular, we discuss how all of that information relates to people living with MS.

Dr. Kaisey, an assistant professor in the Department of Neurology at Cedars-Sinai Medical Center in Los Angeles focuses her practice on caring for people with MS and other neuroimmune conditions. She teaches Cedars-Sinai neurology residents in both inpatient and outpatient settings and assists with the MS fellowship. She's won multiple teaching awards including the AB Baker teacher recognition award from the American Academy of Neurology.

Dr. Kaisey is active in research and has several publications on the diagnosis and misdiagnosis of multiple sclerosis. Her work includes developing novel tools to more quickly and accurately diagnose MS.

She can be found on Instagram @themsmd and YouTube where she provides, in a quick and concise way, all the latest in MS research as well as tips for living well with MS. Links to both of those can be found in the Episode Notes.

In this episode, Dr. Kaisey and I cover not only the most commonly asked questions regarding COVID and MS, but also the questions that we might be curious about but aren't often discussed.

EPISODE NOTES:

- Is MS alone considered an underlying condition?

- Which MS treatments put you at higher risk?

- What about the timing of a vaccine and your infusion?

- Which MS drug puts you at 4x higher risk of being hospitalized from Covid?

- Tysabri and the blood brain barrier.

- The sweet spot for timing your vaccine and your infusion for best vaccine efficacy.

- Vaccine response and antibody testing.

- Will the vaccine evolve as new variants emerge?

- How the vaccine was designed.

- What to do if you want to get a Covid vaccine and a flu vaccine and when? Can you get them at the same time?

- Typical side effects of first and second doses of the COVID vaccine.

- Dr. Kaisey's Conquer MS project. Link below.

- Should an MS patient get a vaccine booster?

- A third dose or a booster? Which one? Is there a difference? Are you eligible?

- How long does your natural immunity last if you've had COVID?

- Mixing brands of vaccines. Is it safe?

- How were they able to bring the COVID vaccine to market so quickly? Did they cut corners? Were safety measures sidestepped?

- How long until we'll have some sense of normalcy?

- Masks. Are they still important?

LINKS:

Where to find Dr. Marwa Kaisey:

Instagram - @themsmd

YouTube - https://youtube.com/c/drmarwakaisey

The MS Gym

Instagram - @themsgym

Website - www.themsgym.com

Facebook - https://www.facebook.com/groups/TheMSGym/?ref=share

Brooke Slick

Instagram - @brooke.slick

Website - www.brookeslick.com

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