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Multiple Sclerosis Podcast, hosted by Brooke Slick and Jodi Feltham: For Living a Life by Design not Diagnosis
Episodes
Saturday Mar 21, 2020
Saturday Mar 21, 2020
In this impromptu episode, I'll be sharing information that I've gained regarding the Coronavirus, also known as COVID-19, and its impact on those who have MS.
The Coronavirus is the potentially deadly virus that reportedly surfaced in China in December of 2019 and has now swept the globe in what is now considered pandemic proportions. With this episode, I'm hoping to arm you with information that will quell your fears and help you to safely move forward as we all navigate this hopefully once in a lifetime occurrence. Just like MS, this virus knows no border, so we're ALL impacted. Please listen as I do my best to inform you about what may or may not put someone with MS at higher risk of contracting or fighting off the virus.
EPISODE NOTES:
-The interview that inspired this episode
-Dr. Aaron Boster of the Boster Center for Multiple Sclerosis and actor and MS advocate Damian Washington
-The risks that may or may not be specific to people with MS
-Does MS put you at higher risk for contracting the virus?
-Will someone with MS struggle fighting off the disease
-What symptoms to look for
-The incubation period
-How you can contract the virus
-Where the virus likes to hide
-Clean everything!
-6 tips on how to avoid contracting the virus
-Who is it high risk?
-The risk for people with MS
-The list of which MS drugs put MSrs at the highest risk
-Injectables, pills and infusions
-Damian and Dr. Boster's Q&A
LINKS:
UPDATED CDC RECOMMENDATIONS FOR MASKS!
INTERVIEW - Coronavirus/COVID-19 - MS Views and News – with Damian Washington & Dr. Aaron Boster
Damian Washington’s NoStressMs - YouTube Channel
MS Views and News - YouTube Channel
Dr. Aaron Boster - YouTube Channel
The Boster Center for Multiple Sclerosis
Host: Brooke Slick
Wednesday Mar 11, 2020
Wednesday Mar 11, 2020
In this week's episode you'll get an exclusive look at one of the many advantages of being part of the MS Gym Membership Community. It's called Buddy Groups and it may be just what you've been looking for.
Before I do that, I want to back this up a little bit and add a little more clarity as to the difference between The MS Gym and the MS Gym Membership Community.
First, the MS Gym is the world's largest online provider of FREE neurologically-based exercises and movement methods designed to use the power of neuroplasticity to re-train the brain to move differently in order to correct unhealthy movement patterns and improving communication between nerves, muscles, and joints. All of this FREE information is easily available on The MS Gym website, YouTube, Instagram and Facebook.
Second, The MS Gym Membership Community, which currently has over 1,600 members, is a prescription-based opportunity with such benefits as MS-specific movement plans and exercises tailored specifically to your needs. Programs such as Sitting Strong, Movement Camp, Companion Guides, and BGB Bootcamp, in both standing and sitting versions, are just a few of the detailed, customized programs that you won't see anywhere else and are specifically designed to reteach your brain how to build alternative neuromuscular pathways, basically, to work around the nerves damaged by MS so you can get your life back.
Another fantastic benefit is the new MS Gym app where you can access all of the programs I just mentioned anywhere you go. Right from your phone.
At the core of the Membership Community is a private Facebook group called The Members Only Corner where members from around the world can interact with each other for advice, support, and direction. It's from this community that Buddy Groups came to light. It was a perfect opportunity for members to form small groups of like-minded individuals to meet up through video software such as Facebook Messenger and Zoom to chat and even exercise together. A buddy group can be based on your location, whether it be a part of the US, the UK, Australia etc, your interests like travel, knitting, crossword puzzles and the like, or it could be based on your MS-rooted problem area like foot drop, balance, wheelchair challenges, or dexterity. It can truly be whatever you want it to be. If you're interested in creating or joining a buddy group and you're already a member of The Membership Community, just do a search for #buddygroup in Facebook's Members Only Corner (MOC) and you'll find all the instructions and guidelines you'll need. It's all right there for you. Easy peasy.
Here's the fun part and the reason for today's episode. I was fortunate enough to have the members of the original buddy group, the MSfits, agree to allow me to interview them all at the same time. I wanted to know exactly what goes on behind the scenes. What a typical buddy group session looks like, and sounds like. What are they talking about? What are they doing? How long do they last? I wanted to know it all and that's exactly what I got!
EPISODE NOTES:
-What is a Buddy Group?
-The difference between the MS Gym and the MS Gym Membership Community
-The Members Only Corner
-How Buddy Groups connect
-Finding your people
-Which software to use
-What happens during these meetups
-How often do you meet
-Using the programs from the MS Gym to exercise together
-Making an effort to stay organized, but leaving room for fun
-Cheering each other on
-Checking in each day
-Finding motivation from each other when you thought you couldn't
-Becoming a family
-It's not always about commonalities
-Dedication to getting better
-The length of meetups
-Sharing the good and the bad
-Using tips and tricks from the MS Gym programs
-Finding comfort in connection
-Meeting in person at The MS Gym Summit
-Avoiding isolation through Buddy Groups
-Giving a Buddy Group a try even if you don't think you need one
-Being accountable for each other
-The conversation is not always about The MS Gym
LINKS:
Join The MS Gym Membership Community
Host: Brooke Slick
Wednesday Feb 26, 2020
Wednesday Feb 26, 2020
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In this episode, Trevor is joined by his beloved wife, Misty, who is a fan-favorite in the MS Gym community. Her compassionate insight paired with Trevor's in-depth knowledge of neuroplasticity and how the body can work around the damage MS inflicts makes for a dynamic duo of encouragement, inspiration and mindset molding that will leave you feeling hopeful. If you're ready to tackle your fears and reset the trajectory of your MS path, this episode is for you. EPISODE NOTES:-What it means to progress -Meeting you where you're at -Success will build over time -Your body/brain can't digest "all the things" at once -Slow down to speed up -Getting overwhelmed and doing nothing -Easing into a situation -Rethinking your idea of perfection -How the little things can throw you off -Incremental steps vs. cold turkey -Don't let your fear overshadow hope -Burning out from overdoing -BGB Bootcamp -Progress is not linear -Forget the get-fixed-quick mentality -Evaluate and purge threats -Using resources to stay organized -Expect setbacks -Mastering the fundamentals -The mortgage analogy -Your brain adapts to demands LINKS: |
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Tuesday Feb 11, 2020
Tuesday Feb 11, 2020
This episode addresses our frustration with able-bodied people not "getting us" and what we could be doing to alleviate the divide with communication and a differently angled perspective.
EPISODE NOTES:
- MS and social media
- Looking for confirmation that you're not the only one
- Complaining/venting
- One social media MS theme that sticks out
- How insensitive able-bodied people can be
- They just don't get us
- Should they get us?
- They don't speak our language
- Are they insensitive or are we sensitive?
- Teaching the able-bodied our language
- Communication is key
- The able-bodied are not psychic
- Asking for help even if you don't want to
- Not everybody is going to get you
- There will always be some unthoughtful, unsympathetic jerk who could ruin your day
- The able-bodied person may not even realize they're being what appears to be insensitive
- It's your responsibility to educate
- You need to teach them your language
- Forget about Aunt Harriett
LINKS:
Wednesday Jan 15, 2020
Wednesday Jan 15, 2020
The episode that so many of you have asked for is finally here. It's all about CBD!!
This week's guest is Licensed Clinical Social Worker/Integrated Health and Wellness & CBD Consultant, Erica Zachary, and as and added bonus, we have a special guest host, Tracy Pulkrabek. Always wondered what CBD could do for you? What it is and what it isn't? Tune in as Erica and Tracy break it all down into easily digestible bites.
EPISODE NOTES:
-The controversy
-Choosing CBD over traditional drugs
-CBD and THC products
-Realizing that it really does work
-Unrealistic fears that it's a gateway drug
-Benefits without side effects
-What exactly is CBD?
-The difference between CBD and hemp
-The different forms of CBD
-Alleviating spasticity
-Want a more restful sleep?
-The psychotropic effects of THC
-The biggest misconception about CBD
-CBD is for health not high
-What to be leery of
-A Certificate of Analysis (COA)
-No prescription required
-Insurance coverage
-Pricing
-Dosage
-Products Erica recommends
-Cooking with CBD
-Our body's ability to create our own CBD
-How CBD seeks out deficiencies
-Plants over pills
-CBD, brain fog and weight loss
-Start low, go slow
-CBD for anxiety
-Legal or not legal
LINKS:
Erica Zachary
EmpowerYOU
Life by DesignLicensed Clinical Social Worker/Integrated Health and Wellness & CBD Consultant
CBD online dispensaries
www.empoweryou2wellness.newyoupro.com
Telemental health therapy and holistic consultation practice for women with MS
Websites for more information about the Endocannabinoid system:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5576607/
Wednesday Jan 08, 2020
Wednesday Jan 08, 2020
This throwback Thursday episode is the perfect way to kick off your new year, or any day of the year for that matter! I had never heard this motivational speech from Trevor before and, wow, was I blown away. By the end of his speech, I was saying to myself "Yes! Yes! Yes! I can do this!", and you can too. If you're doubting yourself and thinking you can never win against MS, stop what you're doing right now and listen to this episode. It's time to let your rebellious side come out.
EPISODE NOTES:
- Your year of rebellion
- It's time to rewrite your prognosis!
- In order to improve, you have to reject outside input
- Rewriting your prognosis
- Figure out what's causing stress in your life and walk away from it
- Ruthlessly protecting your recovery process
- Rebel against the dream crushers
- You don't have to be walking to claim a victory
- Changing the forecast of your future
- The MS rules don't apply to you
- You can counteract MS
- You have the resources and support to overcome
- The process of believing you can heal
- Ignoring the naysayers
- There's no quick fix
- Daily commitment
- You won't see improvements every day
- Counteracting MS is a full-time job
- Visualizing movements you can't currently do
- Eventually your brain will feel safe enough to do something different
- Reject and rebel against your doubts
- Having MS for 20+ years and seeing improvements- It's never too late to transform your MS body
Wednesday Jan 01, 2020
Wednesday Jan 01, 2020
In today's episode, I have the good fortune of talking with Causso Moore of My Struggle is My Strength. He's an Atlanta-based MS activist, motivational speaker and social media powerhouse.
Whether you find him on Instagram, Facebook, Twitter, or his own website, his raw online content where he shares his own struggles and triumphs as well others around the globe, is a go-to resource for inspiration, mindset work and perspective.
If you need a kick in ass to get you moving, if you're looking for some light on a dark MS day, if you need to be reminded that MS isn't the end for you, just a new chapter, keep listening, because Causso is gonna set you straight.
EPISODE NOTES:
- Causso's Instagram presence
- Hitting rock bottom and working his way back
- How Ocrevus is helping him
- The gym was a natural choice
- Sharing the good, the bad and the ugly on video online
- Finding motivation from those he's inspired
- Nothing will change until you change your mindset
- Neuroplasticity is key
- Your perspective is your responsibility
- Finding strength in working out
- Getting out of a dark space
- Are you going to change now or never?
- Knowing when to take a break and not overdoing it
- The advantage of taking small steps to meet your goals
- Making a commitment to do what you can wherever you are
- How his documentary became a turning point in his online presence
- The My Struggle is My Strength brand
- The mission of his efforts and his brand
- Making a difference through public speaking
- The greatest gift that MS has given Causso
- Empowering and educating others
- Being diagnosed is a new chapter
- Finding a way to accomplish your goals your way
LINKS:
Causso's links:
His website - My Struggle is My Strength
Email: Mystruggleismystrength@gmail.com
Thursday Dec 19, 2019
Thursday Dec 19, 2019
Another classic Throwback Thursday from Trevor will get you thinking about tomorrow. Whatever it brings, how will you handle it? It could all change overnight. Are you ready?
Wednesday Dec 11, 2019
Wednesday Dec 11, 2019
When the opportunity arose to have today's guest on the podcast, I was more than elated. She's an absolute superstar in the MS space. From her award-winning blog, Tripping on Air, that chronicles her life with MS, to her Instagram presence, to the recent WebMD documentary featuring her, Ardra Shephard is calling bullshit on how society views differently-abled individuals. Her content is overflowing with upfront, often comically deadpan observations about living with MS and, equally as important, living with mobility devices. Mobility devices, and learning how to live with them with confidence, grace and style for days is her jam. In today's episode, Ardra shares with us how she threw her vanity to the wind and said screw it. If there's nobody else out there representing what I want to accomplish with MS, and while using a mobility device, I'm going to be that person. And that's exactly what she's done.
EPISODE NOTES
- Why a blog?
- When an invisible disease becomes visible
- Clearing the air by writing
- Looking for a role model that didn't exist
- The evolution of an Instagram feed
- Deciding to be the example
- Where are the people like me?
- The lack of resources on mobility device use
- Naming her device
- The guy with the fedora
- I can still be a badass with a mobility device
- You can't control what others think about disability
- Not everyone's an asshole
- MS DOES have you
- Giving yourself permission to say "This sucks!"
- The dictator that lives in your body
- When people forget you have MS
- Fixing the disabled = "less than" mentality
- When disability is marginalized
- #babeswithmobilityaids
- Don't feel sorry for me
- Dreaming about walking
- Disability is expensive
- Comparing mobility devices
- A shift toward better design
- How your presence makes others feel
- Insensitive things people say
- Opting to live beyond the safety of your home
- Living a life less lived because you opted not use a mobility aid
- Social media for representation & information
- The Selma Blair effect
- Being an influencer can be a good thing
- 2020 is the year of clarity
- What Ardra's working on
- A television show based on Ardra's blog
LINKS:
Ardra's website: https://trippingonair.com/
Ardra's WebMD Documentary -
https://m.youtube.com/watch?v=wW7yXFp563A&feature=youtu.be
Ardra in Momentum Magazine -
http://momentummagazineonline.com/awesome-aliases/
Ardra's Optimus Prime (snazzy rollator) -
Wednesday Dec 04, 2019
Wednesday Dec 04, 2019
In this powerful Throwback Thursday episode, Trevor will guide you through putting down your mental weapons of MS destruction and surrendering to a more strategic plan to defeat your challenges.
EPISODE NOTES:
- Is your "fight" against MS hurting you?
- Fighting is demanding
- Fighting to maintain who you were
- The secret to healing
- Are you fighting yourself or your MS?
- Fighting to prove your self-worth
- Give up, fight or freedom. It's your choice.
- MS doesn't disqualify you from being loved and worthy
- Picking your fights
- Surrender
- You can outsmart your MS
- A strategy for healing
- MS is now part of your story
Links: