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Multiple Sclerosis Podcast, hosted by Brooke Slick and Jodi Feltham: For Living a Life by Design not Diagnosis
Episodes
Wednesday Jan 08, 2020
Wednesday Jan 08, 2020
This throwback Thursday episode is the perfect way to kick off your new year, or any day of the year for that matter! I had never heard this motivational speech from Trevor before and, wow, was I blown away. By the end of his speech, I was saying to myself "Yes! Yes! Yes! I can do this!", and you can too. If you're doubting yourself and thinking you can never win against MS, stop what you're doing right now and listen to this episode. It's time to let your rebellious side come out.
EPISODE NOTES:
- Your year of rebellion
- It's time to rewrite your prognosis!
- In order to improve, you have to reject outside input
- Rewriting your prognosis
- Figure out what's causing stress in your life and walk away from it
- Ruthlessly protecting your recovery process
- Rebel against the dream crushers
- You don't have to be walking to claim a victory
- Changing the forecast of your future
- The MS rules don't apply to you
- You can counteract MS
- You have the resources and support to overcome
- The process of believing you can heal
- Ignoring the naysayers
- There's no quick fix
- Daily commitment
- You won't see improvements every day
- Counteracting MS is a full-time job
- Visualizing movements you can't currently do
- Eventually your brain will feel safe enough to do something different
- Reject and rebel against your doubts
- Having MS for 20+ years and seeing improvements- It's never too late to transform your MS body
Wednesday Jan 01, 2020
Wednesday Jan 01, 2020
In today's episode, I have the good fortune of talking with Causso Moore of My Struggle is My Strength. He's an Atlanta-based MS activist, motivational speaker and social media powerhouse.
Whether you find him on Instagram, Facebook, Twitter, or his own website, his raw online content where he shares his own struggles and triumphs as well others around the globe, is a go-to resource for inspiration, mindset work and perspective.
If you need a kick in ass to get you moving, if you're looking for some light on a dark MS day, if you need to be reminded that MS isn't the end for you, just a new chapter, keep listening, because Causso is gonna set you straight.
EPISODE NOTES:
- Causso's Instagram presence
- Hitting rock bottom and working his way back
- How Ocrevus is helping him
- The gym was a natural choice
- Sharing the good, the bad and the ugly on video online
- Finding motivation from those he's inspired
- Nothing will change until you change your mindset
- Neuroplasticity is key
- Your perspective is your responsibility
- Finding strength in working out
- Getting out of a dark space
- Are you going to change now or never?
- Knowing when to take a break and not overdoing it
- The advantage of taking small steps to meet your goals
- Making a commitment to do what you can wherever you are
- How his documentary became a turning point in his online presence
- The My Struggle is My Strength brand
- The mission of his efforts and his brand
- Making a difference through public speaking
- The greatest gift that MS has given Causso
- Empowering and educating others
- Being diagnosed is a new chapter
- Finding a way to accomplish your goals your way
LINKS:
Causso's links:
His website - My Struggle is My Strength
Email: Mystruggleismystrength@gmail.com
Thursday Dec 19, 2019
Thursday Dec 19, 2019
Another classic Throwback Thursday from Trevor will get you thinking about tomorrow. Whatever it brings, how will you handle it? It could all change overnight. Are you ready?
Wednesday Dec 11, 2019
Wednesday Dec 11, 2019
When the opportunity arose to have today's guest on the podcast, I was more than elated. She's an absolute superstar in the MS space. From her award-winning blog, Tripping on Air, that chronicles her life with MS, to her Instagram presence, to the recent WebMD documentary featuring her, Ardra Shephard is calling bullshit on how society views differently-abled individuals. Her content is overflowing with upfront, often comically deadpan observations about living with MS and, equally as important, living with mobility devices. Mobility devices, and learning how to live with them with confidence, grace and style for days is her jam. In today's episode, Ardra shares with us how she threw her vanity to the wind and said screw it. If there's nobody else out there representing what I want to accomplish with MS, and while using a mobility device, I'm going to be that person. And that's exactly what she's done.
EPISODE NOTES
- Why a blog?
- When an invisible disease becomes visible
- Clearing the air by writing
- Looking for a role model that didn't exist
- The evolution of an Instagram feed
- Deciding to be the example
- Where are the people like me?
- The lack of resources on mobility device use
- Naming her device
- The guy with the fedora
- I can still be a badass with a mobility device
- You can't control what others think about disability
- Not everyone's an asshole
- MS DOES have you
- Giving yourself permission to say "This sucks!"
- The dictator that lives in your body
- When people forget you have MS
- Fixing the disabled = "less than" mentality
- When disability is marginalized
- #babeswithmobilityaids
- Don't feel sorry for me
- Dreaming about walking
- Disability is expensive
- Comparing mobility devices
- A shift toward better design
- How your presence makes others feel
- Insensitive things people say
- Opting to live beyond the safety of your home
- Living a life less lived because you opted not use a mobility aid
- Social media for representation & information
- The Selma Blair effect
- Being an influencer can be a good thing
- 2020 is the year of clarity
- What Ardra's working on
- A television show based on Ardra's blog
LINKS:
Ardra's website: https://trippingonair.com/
Ardra's WebMD Documentary -
https://m.youtube.com/watch?v=wW7yXFp563A&feature=youtu.be
Ardra in Momentum Magazine -
http://momentummagazineonline.com/awesome-aliases/
Ardra's Optimus Prime (snazzy rollator) -
Wednesday Dec 04, 2019
Wednesday Dec 04, 2019
In this powerful Throwback Thursday episode, Trevor will guide you through putting down your mental weapons of MS destruction and surrendering to a more strategic plan to defeat your challenges.
EPISODE NOTES:
- Is your "fight" against MS hurting you?
- Fighting is demanding
- Fighting to maintain who you were
- The secret to healing
- Are you fighting yourself or your MS?
- Fighting to prove your self-worth
- Give up, fight or freedom. It's your choice.
- MS doesn't disqualify you from being loved and worthy
- Picking your fights
- Surrender
- You can outsmart your MS
- A strategy for healing
- MS is now part of your story
Links:
Tuesday Nov 26, 2019
Tuesday Nov 26, 2019
If you want a quick shot of inspiration as we head into the holidays, be sure to tune into this week's episode where I share off-the-cuff thoughts on mobility devices and the mind games we play that hold us back from participating in life.
PLUS, you don't want to miss the challenge at the end!
LINKS:
Wednesday Nov 20, 2019
Wednesday Nov 20, 2019
In this Throwback Thursday classic from Trevor, he asks the question "What is your MS identity?" Now that you have MS, inevitably, your life is going to change. Are you prepared for those changes? Are you going to be able to take the hits and rebound with a win? In this episode, as usual, Trevor brings the fire as he guides you through the ever-winding road of life with MS.
EPISODE NOTES:
- What's going to change?
- Internal pain and external pain
- Loss of control
- Feeling cast out
- Relationship loss
- The world doesn't condone "taking a break"
- The shock and overwhelm of MS literature
- Choosing not to be a slave to your MS
- When you're not sure that tomorrow will be any better
- Staying connected
- You're healing may surprise you
- Suicidal thoughts
- Moving forward when there is no road
- A winning record
- How to gain wins
- A win is a win no matter the size
- Track your wins for a week
- Victor or victim? Warrior or slave?
- Learning from losing
- What is your MS identity?
- Giving is winning
- What do you want to stand for?
Links:
Wednesday Nov 13, 2019
Wednesday Nov 13, 2019
In this episode, Binty, a former pharmacist and mother of two, describes her long road to diagnosis, her discovery of The MS Gym and the subsequent victories that are helping her continue to thrive despite physical setbacks.
EPISODE NOTES:
- The long road to an MS diagnosis and the clear path to The MS Gym
- Trekking poles, AFOs and assistive devices
- The symptoms that affect her most
- Which MS Gym movement plans she relies on for relief
- Use it or lose it
- Visible victories
- Cooking is a luxury
- Once and done is not the ticket
- Approaching her children about her diagnosis
- CBD oil for sleep and spasticity
- Mindset is everything
- How she handles an MSy day
- Using Trevor's motivational speeches for a boost of inspection
- Remaining active despite MS
- Seeking out social activities customized for your condition
- The power of meditation
- Prioritizing to preserve energy
- Don't be afraid to say "not today"
LINKS:
Wednesday Oct 30, 2019
Wednesday Oct 30, 2019
This week, we're sharing an epic throwback episode from Coach T where he gives advice on how to navigate the stress, overwhelm and oftentimes obligation we feel during the holiday season. I just listened to the whole episode myself and I've got to say, much like a favorite holiday recipe, it's one part pep talk. two parts straight talk, with a heaping spoonful of motivation and compassion mixed in. Let the festivities begin!
Episode Notes:
- Internal stress and external stress
- The two camps of progress
- Holiday stress is a global phenomenon
- The overwhelm and added pressure of the holidays
- Preparing for potential setbacks
- The expectations others have of you
- Staying compliant to your movement program
- Thriving despite distraction
- The worst thing you can do
- Movement is the one thing that counteracts internal and external threats
- Why putting off your movement meds over the holidays is a mistake
- Stress of family and stress from lack of family
- Preparation expectation
- Asking for help is not a weakness
- Delegating what you can no longer accomplish with guilt
- Knowing when it's time to rest
- Validation
- Guard your time
- Dealing with loneliness during the holidays
- Don't take the holiday drama seriously
- Remember who you are
- Keep doing what you're doing
- Have a good time! Choose to be happy.
LINKS:
Wednesday Oct 16, 2019
Wednesday Oct 16, 2019
EPISODE NOTES:
- The evolution of the amount of care required over time
- Failing drugs, failing health
- When doctors don't acknowledge caregiver input
- Preserving the patient's dignity
- Being a spouse and a carer
- The price a carer can pay if they don't tend to their own healthcare needs
- Never underestimate how stress can affect a caregiver's wellbeing
- You can't care for the patient if you don't care for yourself
- Home modifications to make life easier for the patient and the caregiver
- When your home feels like a medical facility
- Handling a patient who has bouts of anger or lashes out
- The Mirror Theory
- Not taking a patient's behavior personally
- The importance of support groups
- Explaining your situation to family and friends
- How to approach a child about a parent's illness
- How organization is the key to your sanity
- Utilizing white boards and diaries
- Don't panic. Get help.
- Planning for the future when your partner has a chronic illness
- Don't stop planning for the future. Plan differently.
- Don't lose yourself. Ask for help. You are not alone.
LINKS: